Thank you for sharing this very important and insightful story. Rarely a month passes that I do not meet a person or family member impacted by this serious illness that remains elusive. The patients I meet are extraordinary, usually in the forefront of their careers or communities until they seemingly disappear behind closed doors without appropriate medical attention. I feel ill with many of my travel abroad college classmates overseas July 5,1985. I was fortunate to have received a diagnosis and medication immediately. Such would not have been the case if I had come down with the worse flu in my life at home. We need everyone’s help to push past the roadblocks of dead weight blocking funding already deemed necessary by Dr. Colin’s the director of the National Institutes of Heath.

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