Thank you for so adeptly sharing with the world the reality of life with ME! I will never forget the fateful day 12/24/09, when the never-ending flu ended my career as an RN and my incredibly, active lifestyle. The horror of not understanding why I could not get up despite a deep desire to do so and seeing doctors who appeared to have no idea what was wrong was terrifying. No patient should ever be subject to such trauma! I remain homebound, but no longer bedbound after spending the first five years being so. My blood pressure and heart rate were skyrocketing every ti I stood. I finally got a diagnosis of POTS and treatment with IV fluids allowing me to tolerate sitting up and finally stand long enough to manage my own personal hygiene! God bless you all as we celebrate each victory along the way!
Thank you for so adeptly sharing with the world the reality of life with ME! I will never forget the fateful day 12/24/09, when the never-ending flu ended my career as an RN and my incredibly, active lifestyle. The horror of not understanding why I could not get up despite a deep desire to do so and seeing doctors who appeared to have no idea what was wrong was terrifying. No patient should ever be subject to such trauma! I remain homebound, but no longer bedbound after spending the first five years being so. My blood pressure and heart rate were skyrocketing every ti I stood. I finally got a diagnosis of POTS and treatment with IV fluids allowing me to tolerate sitting up and finally stand long enough to manage my own personal hygiene! God bless you all as we celebrate each victory along the way!