I agree it is unacceptable that the government has neglected research into our illness. But I disagree that the things I mention 'just treat some symptoms'. They support and help reverse biological problems that result in those symptoms, rather than drugs, most of which just temporarily cover up symptoms like pain, while doing nothing to correct the cause of the pain.
Regarding severe ME, please remember that Rituximab was the drug that made Janet Dafoe's son Whitney a lot worse. He was partially bedridden when he started it, but completely bedridden 9 months later. He lost the ability to read and write because of that drug.
In reply to We have no approved fda by Matina
I agree it is unacceptable that the government has neglected research into our illness. But I disagree that the things I mention 'just treat some symptoms'. They support and help reverse biological problems that result in those symptoms, rather than drugs, most of which just temporarily cover up symptoms like pain, while doing nothing to correct the cause of the pain.
Regarding severe ME, please remember that Rituximab was the drug that made Janet Dafoe's son Whitney a lot worse. He was partially bedridden when he started it, but completely bedridden 9 months later. He lost the ability to read and write because of that drug.