Thank you, Kelly, for sharing your thoughts. I have indeed found B12 to be helpful (though not the others you mention -- even though I have tried them a few times). The trouble is, I'm still bedridden and homebound most of the time. So whereas the B12 is helpful, it does not really do too too much to make my life easier. It is true that some people with ME will find something that helps. It could be antiviral meds, it could be diet, etc. But there are no FDA approved treatments for ME, and that is because the government has failed to seriously study ME for the three decades I have been sick. There is a US gov't study happening now, but any treatments ideas to come out of it will take many many many more years. A long wait when each day is hell in your bed.
In reply to With all due respect, I think by Kelly
Thank you, Kelly, for sharing your thoughts. I have indeed found B12 to be helpful (though not the others you mention -- even though I have tried them a few times). The trouble is, I'm still bedridden and homebound most of the time. So whereas the B12 is helpful, it does not really do too too much to make my life easier. It is true that some people with ME will find something that helps. It could be antiviral meds, it could be diet, etc. But there are no FDA approved treatments for ME, and that is because the government has failed to seriously study ME for the three decades I have been sick. There is a US gov't study happening now, but any treatments ideas to come out of it will take many many many more years. A long wait when each day is hell in your bed.